Essay Hemophilia

“I honestly wasn’t expecting to get picked,” Sperry said. most of us don’t play sports, (but) I’ve always loved singing and dancing (and) that has become … and a way to express (myself).” Sperry — who has been in “Oklahoma!,” played Young Simba in “The Lion King,” Lord Farquaad in “Shrek: The Musical” and is currently in Hillcrest's ensemble for “Hairspray” through Nov.To qualify, you must either live in Pennsylvania (Eastern PA's coverage area) or if you live outside the state, then you must be treated at one of the following six Hemophilia Treatment Centers: Scholarship recipients receive up to ,000 a year for a maximum of 4 years, as long as the student remains in good standing with the college and completes a volunteer requirement at an Eastern PA event each year.

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“I had a host of really significant challenges with my hemophilia growing up — I was out of school all the time, I was suffering from really bad bleeds often (and) I was missing out on social activities.

“A kid who is affected by a bleeding disorder needs other things they can be incentivized to consider as forms of growth and socialization and ways to think outside of their school and prescribed environment," he continued.

For Lynch, directing this musical is anything but inconvenient.

“I grew up just wanting to play basketball,” Lynch said.

All freshmen struggle with newfound freedoms, decision-making, time and money management, and other responsibilities like doing laundry and planning meals—some or all of which were likely done for them at home, says Jim Kessler, director of the Department of Disability Services at the University of North Carolina at Chapel Hill.

For those with a chronic medical condition, adjustments may be even greater.

“It isn’t this disease or defect that is going to kill you if you get a paper cut,” Sperry told the Deseret News.

After submitting a short audition video and writing a personal essay, Sperry, a freshman at Hillcrest High School, was one of 25 students in the nation selected to participate in the musical.

"And when I found the arts, I realized that.” Lynch’s goal with this musical theater intensive is to end the overly frail and vulnerable stigmas associated with hemophilia by encouraging kids to find the arts, just like he did. “And if you can channel yourself toward the arts and be like, ‘You know what, I'm more than that. And this is how I'm going to put it in the world and hemophilia can’t take that away from me’ — that is empowering.” Lynch was reminded of that empowerment while reading Sperry's essay — one that stood out for the director.

Lynch recalled a specific line that, in his mind, captured the entirety of what the arts can do for kids with hemophilia.


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